It's not JUST hair!!!!

I will never forget the first person telling me "it's JUST hair" after finding out that my daughter had Alopecia. The very thought of being so insensitive at a time like that baffled me. While it was "just hair" and she was otherwise healthy, it angered me that people could not see the images I did of the emotional roller coaster I believed we would take. How could you say it's "just hair". Hair is what often helps to differentiate sex, it's what so many of us spend hundreds if not thousands of dollars on every year to make us seemingly more "beautiful", it's our HAIR. For every person that said that I wanted to tell them to go get a pair of buzz clippers and shave their hair off RIGHT NOW. No warning, no chance to prepare. Just shave your head. Although that is not as sudden as hair loss happens in Alopecia patients, I would imagine that the shock factor is the same. In the last week I have tried to remind myself that hair is not what makes a person and I continually remind myself of the blessings I have.

My daughter, my 15 month old daughter, was diagnosed with this auto immune disease one week ago. In the past week I have already witnessed amazing support coupled with complete ignorance. I am starting this blog to document the journey from the beginning. I do not know all that it will entail, but I do know that I will do anything for my daughter and so I am ready to fight. Fight for acceptance, fight the stares, fight for her to be who she is AND FIGHT FOR A CURE!!!!